Comments on: The PET Scan That Wasn’t http://amamasblog.com/2009/06/05/the-pet-scan-that-wasnt/ Daily life with my two boys and other topics Tue, 07 Feb 2012 09:49:39 +0000 hourly 1 http://wordpress.org/?v= By: Stacy http://amamasblog.com/2009/06/05/the-pet-scan-that-wasnt/comment-page-1/#comment-5440 Stacy Thu, 18 Mar 2010 02:19:40 +0000 http://amamasblog.com/?p=1594#comment-5440 Being a breast cancer survivor and having to undergo a PET scan because of scar tissue on my lung, I felt the frustration while reading the PET scan that wasn't. My thyroid is now acting up, a result of the radiation. It's always one thing after another. I've undergone a numer of Muga scns, CT sans, ultrasounds and MRI's. I look forward to the day it's done and I can get on with my life. Remain strong, your not alone!! Being a breast cancer survivor and having to undergo a PET scan because of scar tissue on my lung, I felt the frustration while reading the PET scan that wasn’t. My thyroid is now acting up, a result of the radiation. It’s always one thing after another. I’ve undergone a numer of Muga scns, CT sans, ultrasounds and MRI’s. I look forward to the day it’s done and I can get on with my life. Remain strong, your not alone!!

]]> By: christine http://amamasblog.com/2009/06/05/the-pet-scan-that-wasnt/comment-page-1/#comment-4556 christine Sun, 18 Oct 2009 19:39:41 +0000 http://amamasblog.com/?p=1594#comment-4556 I am also a cancer survivor and mother of a beautiful 5 year old. I was diagnosed with thyroid cancer 5 years ago and a month ago my doctor believed it may have returned. I had a MRI and ultrasound and both came back with a positive finding. My doctor a great believer in PET fought with the insurance company to have the scan. Like you i have no energy to do so. I was so happy when the results came out positive. I decided it would be best to remove the nodes anyway and thank God i did. The results on all four nodes were positive for cancer. I no longer think that this is the scan that should be used on patients who rely on the results and then decide what they will do. Trust your blood levels, i wish you all the best I am also a cancer survivor and mother of a beautiful 5 year old. I was diagnosed with thyroid cancer 5 years ago and a month ago my doctor believed it may have returned. I had a MRI and ultrasound and both came back with a positive finding. My doctor a great believer in PET fought with the insurance company to have the scan. Like you i have no energy to do so. I was so happy when the results came out positive. I decided it would be best to remove the nodes anyway and thank God i did. The results on all four nodes were positive for cancer. I no longer think that this is the scan that should be used on patients who rely on the results and then decide what they will do. Trust your blood levels, i wish you all the best

]]> By: Thank You for Giving Me Hope | A Mama's Blog http://amamasblog.com/2009/06/05/the-pet-scan-that-wasnt/comment-page-1/#comment-3803 Thank You for Giving Me Hope | A Mama's Blog Mon, 08 Jun 2009 06:45:54 +0000 http://amamasblog.com/?p=1594#comment-3803 [...] The PET Scan That Wasn’t [...] [...] The PET Scan That Wasn’t [...]

]]> By: What-is-this http://amamasblog.com/2009/06/05/the-pet-scan-that-wasnt/comment-page-1/#comment-3798 What-is-this Sat, 06 Jun 2009 10:22:03 +0000 http://amamasblog.com/?p=1594#comment-3798 Thanks for your posts. I presented to a Medicare advisory committee about the need for PET scans in ovarian cancer patients. Medicare will take the recommendations of the panel under consideration and release draft guidance before the end of the year. OCNA will, of course, be advocating for you, but please contact me if you have a story you'd like to share about PET. Thanks for your posts. I presented to a Medicare advisory committee about the need for PET scans in ovarian cancer patients. Medicare will take the recommendations of the panel under consideration and release draft guidance before the end of the year. OCNA will, of course, be advocating for you, but please contact me if you have a story you’d like to share about PET.

]]> By: Cancer Mommy http://amamasblog.com/2009/06/05/the-pet-scan-that-wasnt/comment-page-1/#comment-3795 Cancer Mommy Sat, 06 Jun 2009 02:22:36 +0000 http://amamasblog.com/?p=1594#comment-3795 I'm sorry about your diagnosis. As a cancer survivor, I know all too well all the emotions that go through you. As for the insurance company, I know all too much about that, too. It's worth a call, but don't expect too much. Sometimes you can get somewhere. There really should be no reason why you can't get the scan covered if your doctor prescribed it. But, that's our system today. This should be a wake up call to get your support behind changing our system. I'm not necessarily advocating for Universal Healthcare (although I do think it would be better than what we have now), but there should be some changes to ensure that doctors and their patients can agree on a treatment and know that the insurance company will cover it all. And yes, cancer treatment does cost way more than the cost of a PET scan. I have the bills to prove it. My thoughts are with you as you make your way through this journey. I’m sorry about your diagnosis. As a cancer survivor, I know all too well all the emotions that go through you.

As for the insurance company, I know all too much about that, too. It’s worth a call, but don’t expect too much. Sometimes you can get somewhere. There really should be no reason why you can’t get the scan covered if your doctor prescribed it. But, that’s our system today. This should be a wake up call to get your support behind changing our system. I’m not necessarily advocating for Universal Healthcare (although I do think it would be better than what we have now), but there should be some changes to ensure that doctors and their patients can agree on a treatment and know that the insurance company will cover it all.

And yes, cancer treatment does cost way more than the cost of a PET scan. I have the bills to prove it.

My thoughts are with you as you make your way through this journey.

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