Comments on: Thyroid Cancer- Low Iodine Diet & Waiting for Radioactive Iodine Treatment

By: teresa

teresa — Mon, 30 Aug 2010 05:18:04 +0000

my daughter has thyroid cancer, shes only 20. she had the thyroid removal surgery,but then her medicaid cut her off at 20 years. she need iodine treatment right away. but we have no insurance, and insurances dont want to cover her pre-existing condition. help we need insurance fast.

By: Paul G

Paul G — Fri, 23 Jul 2010 14:26:34 +0000

I have been off of the thyroid meds since Monday and started the low iodine diet yesterday. I feel okay right now, a bit tired but I now it is coming. My guess next week won’t be fun … then the treatment first week in Aug … It seems like every doctor visit, they tell you a little more about what is going to happen … I have to be in seclusion and not sleep with my wife for 3-4 nights while the radioactive stuff leaves my pores, and then I hear of the taste buds pain & no flavor. Well from all that I have read this is still the best option. Thank you all for your writings it has helped.

I am eating Matzo, natural no salt peanut butter, and polmar fruit jams … it sure isn’t Jiff/Welches/ and Wonder Bread.

By: A Mama's Blog

A Mama's Blog — Thu, 22 Jul 2010 13:30:52 +0000

Geneva,

I was posting my latest post, and saw your comment. I am on my way to work, but just wanted to tell you, you can do this! It does get hard, and you will feel very tired and exhausted. You are becoming hypothyroid. Take it hour by hour if you need to. Let everything go, and spend what energy you have on your kids. I found eating a lot of protein raised my energy level some. Maybe you can try that.

Hang in there- you can make it. You will feel better again very soon. I promise.

Let me know how you are doing, or check in on my Facebook page- I’d love to hear from you.

http://www.facebook.com/pages/A-Mamas-Blog/122740853553

Heather

By: Geneva

Geneva — Thu, 22 Jul 2010 08:30:57 +0000

I’m on day five of the low-iodine diet without meds and have started feeling weak. I thought it was because of my diet, but this is feeling different. I’m continuing to work through all this, but wonder now if I can. The nuclear meds is scheduled for 12 days from now. I hope I can make it. I’m getting worried. I must say this blog is just wonderful for a person like me. I have a twelve and eight-year old whom I’m already affecting. I hope I can do this!

By: Kimberly

Kimberly — Sun, 18 Jul 2010 00:14:03 +0000

Hello! My name is Kim. Just turned 35. I stumbled upon this blog, while being here in RAI therapy isolation at home. I have thyroid cancer, hopefly not anymore) and had a total thyroidectomy on May 26, 2010 at Rush Univ in Chicago. I went on synthroid day after surgery. Was on it until June 19. Went off of it for 4 weeks to wait for RAI. Boy were the weeks gettin harder and harder to do any kind of activity, on top of that I had to go on low iodine diet, never realized that its in EVERYTHIN cause salt of course. But I totally understand your thoughts feeling like an old hag! I could even remember things! Well I took the RAI pill yesterday July 16. The thing I found funny is Dr. recommended me to start taking synthroid the day after RAI pill.?? I did by her order and feel little better but has anyone else been instructed to take it that soon after RAI? I know everyones different but just curious after reading other peoples blogs.
Thanks for all your comments!! Also has anyone found something great for the scar? I was using vit E oil, now a silicone based product called ScarFade by Hanson products.