When I was in New York, I was invited to tour the Hope Lodge facility, as a member of the American Cancer Society (ACS) Blogger Advisory Council I serve on.  

The ACS has more than 30 Hope Lodge locations in the United States and Puerto Rico.  Their purpose is to provide cancer patients and their caregivers a temporary free place to stay when having to travel to another city for cancer treatments. 

As I toured the Jerome L. Greene Hope Center in the heart of New York, I was deeply touched.  I had no idea the scope of services they provide for cancer patients.  There are lovely and homey rooms, which don’t feel like hotel or hospital rooms.  Each floor includes a kitchen, dining area, a quiet lounge, and laundry.  In addition, Hope Lodge helps cancer patients with the healing process.  There are support programs which include meditation, touch therapy, support groups, yoga, and nutritional seminars.  Patients also have access to ACS services such as Look Good…Feel Better, the Wig Program, and Man to Man. 

If a patient is staying at Hope Lodge- all of it is free.  They have 60 rooms at Hope Lodge and they are booked every night, months in advance.  To stay at Hope Lodge, a patient has to be referred by a hospital social worker, as they try to serve the patients with the greatest needs.  I was very impressed as the director told us even if a cancer patient isn’t staying at Hope Lodge, if they are in the city for cancer treatment, they can still come and use all the services free of charge. 

I took a lot of pictures of the facility, but there is a virtual tour you can take as well.  I think that captures the lodge much better than the pictures I took. However, as we walked by the common area, there was a party going on.  There was a woman playing the piano, patients and their caregivers listening, talking, and visiting.  There was so much food, much of it baked by volunteers.  There were beautiful cookies which volunteers baked.  These pictures aren’t on the on-line tour:

This really touched me because of the amount of time, care, and sense of community that exists here.  We toured the facility for an hour, but you could tell there was a lot of love, and dedication, not just by the staff, but by the volunteers, caregivers, and patients themselves.

While I was listening to all the information, and seeing this facility, I couldn’t help but feel a bit overwhelmed in the facility.  It is a wonderful place for any cancer patient.  I wish there was a Hope Lodge in Denver, because I would definitely benefited from their services, even if I had not needed lodging. 

The moment that touched me the most, was as the tour was finishing and I was having a few words with Karen Radwin, the Senior Managing Executive.  She had taken us on the tour and had answered all of our questions.  We were standing somewhat away from the group and I told her I had thyroid cancer last year.  I am sure she can’t count how many times she hears cancer stories, but she listened to mine as if it was the only one she had ever heard.  She asked me questions, no one else had ever thought to ask about my cancer and recovery process.  Even though our conversation was just a few minutes, it still is with me.  

I’ve thought a lot about how to write this post.  There are so many wonderful things Hope Lodge provides, it is hard to pinpoint just a few.  But as a cancer survivor myself, the element I felt the most, from the moment I walked in, and what was confirmed by the tour was care.  The staff really cares and does whatever it can to help cancer patients.  Our medical professionals are so busy, it isn’t always possible to get the feeling of care and love in a hospital. 

The fact these lodges exist to provide caring and healing services to cancer patients is priceless.  It is a major step in the recovery process from cancer, and I am so glad Hope Lodges are there for cancer patients and their families in the direst time of need. 

No asks to have cancer.  No one really plans to have cancer.  Not everyone knows what to say or do when a loved one has cancer.  If you live near a Hope Lodge, seek them out.  They can help, even if the patient isn’t staying there. 

In a world where a disease like cancer is ruled by medical diagnosis’s, invading procedures, surgeries, and drugs, to be able to have services on the flip side, care, love, understanding, and support, is invaluable.  It is the difference between surviving cancer, and healing from cancer.

Subscribe to A Mama’s Blog's RSS feed so you never miss a post!

I am back from New York.  Wow!!  I can see why people either love or hate it.  I loved it!  It was such a different experience for me.  I’ve lived near Boulder, CO almost my entire life.  I’ve been to Los Angeles several times, but New York was by far the biggest city I’ve ever been in. 

People were nice and very helpful.  No one was rude or had an attitude.  I felt very safe walking around Times Square at night- there was only about 50,000 other people around, police all around, and almost every shop and restaurant was open.  There was only negative thing happen, and that was on the way to the airport on the way home.  The taxi I took smelled like gasoline, and I was on the verge of getting really sick by the time I got to the airport.  Other than that, everything went great. 

The tour of the New York Hope Lodge was amazing.  I am going to write a more detailed blog post about that, but I was so touched by what they do for cancer patients.  As I listened and saw what they did, I thought back to my own experience with cancer last year and thought it was great there are facilities like this that help the patients with the most need.  Especially in a place like New York, where it is so expensive to stay long-term.  I was impressed to learn there are 40 other Hope Lodges in the United States.  It was clear to see Hope Lodges are a great asset in helping cancer patients and their caregivers fight cancer. 

I hope to write more about New York soon (with pictures!), but I had a long day at work yesterday, and the boys and I are leaving tomorow for our vacation together.  We are going with my dad and step-mom to Lake Superior in the Upper Peninsula of Michigan.  My dad has a relative there who lives across the street from the lake.  The boys are beyond excited for a beach/water vacation.  I haven’t been able to go anywhere with them for two years on vacation, so I am looking forward to this time with them. 

As much fun as I had in New York, the boys were never far from my thoughts.  I missed them!  I kept thinking how much they would enjoy the buildings, the firetrucks, the police cars, and all the sights and sounds.  I decided I am going to take them there one day- when they are older- so they can experience New York and all the amazing sights, before they are in their thirties, like me.    I liked the perspective it gave me, and I want my sons to be able to live and experience other places then where we live. 

As I flew back into Denver, I saw the few tall buildings on Denver’s skyline.  They definitely didn’t look like much after staring at New York’s massive and countless skyscrapers for five days.  They looked tiny by comparison.  But there were mountains, and open spaces.  I could see miles in any direction- something you don’t get to do in New York from the ground.  There wasn’t a cloud in the sky, and they announced it was 75 degrees.  It was a perfect Colorado day, I was going to see Ryan and Cole, and I knew I was home.

Subscribe to A Mama’s Blog's RSS feed so you never miss a post!

I am writing this post from my hotel room near LaGuardia airport in New York City!  I arrived here this evening, and so far I love it.  I have always imagined myself going to New York, but it has never happened- until now.

Last year when I was recovering from cancer surgery and extremely hypothyroid, the annual BlogHer convention was occurring.  I was supposed to have gone with my good friend, Amy, but obviously cancer changed that.  Amy had found out that BlogHer ’10 was going to be in New York, and she entered us in a contest to win a trip to it.  We were finalists!

I was so touched, and had told my mom about the possibility of Amy and I winning the trip.  She told me I had to go to New York. She had been there several times in recent years for her job. She told me even if we didn’t win the trip, I had to go with Amy to New York this summer- she assured me I would love it.

My mom had asked me a few times to go with her, on her business trips, but I never did. I was too busy, or didn’t want to leave the boys, or it wasn’t a good time for me to go.  There was always a reason not to go.

I decided to boycott BlogHer ’10, after I had already obtained tickets because of their Nestle sponsorship.  But I had also been invited by the American Cancer Society (ACS), by the Blogger Advisory Council I serve on, to come to New York for a tour of their Hope Lodge, a meeting, and an event.  Amy decided to attend BlogHer, so our plans were set.

None of the flights would have given me enough time to arrive and be able to attend the ACS event tomorrow on time, so I came out today- by myself.  I was a little bit anxious about coming here alone, but I’ve been fine.  All the people who have helped me have been wonderful, and Amy is arriving tomorrow. I only have to get myself from this hotel to a hotel in Times Square, but I can handle that.    The man I sat next to on the plane even gave me an app for the iPhone that shows all the subway routes, so I am feeling more confident about the subways too.

But all I could think about today was my mom.  I thought about how much I miss her and how much I regret never taking the time to come to New York with her.  As the plane was approaching New York, I touched my mom’s bracelet and I felt her presence- just a normal feeling- like she was sitting next to me.  the sun was setting and it was a gorgeous scene When we landed I got tears in my eyes.

My mom wanted me to come here.  She told me I should do whatever I could to get out here this summer.  My mom loved to travel, loved New York, and clearly she wanted me to experience this.  I got tears in my eyes because I get to do just that.

When I walked off the plane, I was calm-not nervous.  I was traveling alone to a huge city, but I didn’t feel alone.  I felt my mom’s presence with me, and I think- in that place where the sun shines off the clouds at sunset, painting vibrant colors- my mom is with me in New York.

Subscribe to A Mama’s Blog's RSS feed so you never miss a post!

I’ve wanted to attend the annual BlogHer Conference for four years now, and I was so excited a month ago when my plans were finalized, so I could attend. It is being held in New York in August.   I was also very excited I would be going with one of my best friends, Amy from Crunchy Domestic Goddess.  Amy sparked my interest in blogging years ago, and she inspired me to start my own blog.   

Amy and I live in neighboring towns, so we have been working on getting our airfares, so we can fly to New York together.  While we were exchanging e-mails yesterday, she asked if I heard that Stouffer’s, who is owned by Nestle, was now listed as one of BlogHer’s ’10 sponsors?  I had seen a tag-line or two on it, but had not had time to read up on it.  Amy sent me Annie’s, from PhD. in Parenting, blog post, on this subject. 

As I read Annie’s post and did a bit more research myself, my excitement over BlogHer ’10 turned to disappointment.  Nestle is one of the most boycotted companies worldwide since 1970, for engaging in many questionable ethical business practices.  I personally have an issue with their constant efforts and marketing to undermine breastfeeding.  I avoid buying anything Nestle when at all possible.  Like Annie though, I don’t question others about it, or ask my friends if the chocolate chip cookies they made contains Nestle chocolate.  Like most big businesses, it is nearly impossible to avoid Nestle and their brands completely. 

Eating a chocolate chip cookie from a friend is different though, when faced with the knowledge the conference that I really want to attend is being paid for in part, by Nestle.  Another dilemma I have is my conference tickets were wait-listed.  BlogHer specifically said if they were able to get more sponsors, then more tickets would be available.  Nestle was not listed as an original sponsor. It isn’t too far of a reach to conclude the reason I even got a ticket in part, is because of Nestle’s sponsorship.  

I am frustrated that BlogHer would even consider, let alone accept Nestle as a sponsor.  I accept advertising for my blog through BlogHer, but I have specifically opted out of accepting any formula companies, such as Nestle.  BlogHer is aware of the boycott and the issues surrounding Nestle.  I would have rather not received a wait-listed ticket, and not have been able to attend the conference, than attend with this now black cloud of controversy surrounding it.

It bothers me BlogHer, which supports women in so many aspects, accepted Nestle as a sponsor, when their business practices hurt so many women and their children, especially the most vulnerable in developing countries. 

As a member of the American Cancer Society Blogger Advisory Council, there is an event in New York the day before BlogHer, they are sponsoring for me.  I will be in New York to attend that event.  That is a silver lining- I will be able to see firsthand some wonderful programs the American Cancer Society has, and have no moral quandaries about participating in it.

I wrote my beliefs about the blogging event Nestle hosted last October, and the responsibility we have as bloggers. Two sentences I wrote jumped out at me as I re-read my own words, in light of this dilemma:   

…as bloggers, we need to be responsible to something greater than just a company’s marketing campaigns.

People turn to blogs for honest and trust-worthy information.  If we allow ourselves to be “bought” by any and every company that comes a-callin’ should we be surprised when our collective reputation as a source of unbiased, accurate, and honest information is tarnished and eventually weakened?

Do I attend BlogHer and justify the reasons for myself?  How can I stand by what I wrote about being “bought” when for all practical purposes, I am doing the same thing, now that I am aware Nestle is a sponsor? 

There are bloggers who are boycotting Nestle who are still going to attend, and try to raise awareness on this issue. Others are boycotting BlogHer ’10.  That is their personal decision they have every right to make for themselves.  I am not saying they are right or wrong, but I am going to have to decide for myself what the right decision is.

I have missed BlogHer every year, and right now I feel I could missboycott BlogHer ’10 because Nestle is a sponsor, and I would be fine.  Yes, I’d be bummed, and I would miss out on a lot of good information, community, friends, and fun.  But I would also be able to know without a doubt, I did not compromise on an issue I feel very strongly about when it mattered.  Integrity is easy to maintain, when there is no pressure to maintain it. 

I am considering all my options, and will make a decision soon.  I have spent the last three and a half years, building a loyal readership of my blog, and I appreciate every reader I have.  I feel I have a responsibility to my readers as well.  I don’t want to be a blogger who writes about how important breastfeeding is to babies, women, and our society, and then attends a conference sponsored in part, by one of the biggest companies who undermines it on a global scale. 

One truth is the swing of the sentence, the beat and poise, but down deeper it’s the integrity of the writer as he matches with the language~ Don DeLillo

Subscribe to A Mama’s Blog's RSS feed so you never miss a post!

One of the first things I’ve been asked to do as a member of the American Cancer Society Blogger Advisory Council is to dedicate a blog post to someone I love with cancer.  The first “person” who came into my mind was all of my blog readers who have thyroid cancer and have written to me with their stories. 

I could write about Holly who is 37, and a mom of three, who after having a thyroidectomy in September, and radioactive iodine last month, is facing the possibility her cancer has spread into her lymph nodes.  Holly had been told her lymph nodes were fine, but they discovered an area of high iodine intake.  If this spot turns out to be lymph nodes, Holly could be facing another surgery to remove them. 

Or I could write about Patricia who is also 37, and a mom of two.  During the past year, Patricia had a huge lump in her neck and with the urging of her children’s father, she decided to follow up on it. It turned out to be a 6.5 inch goiter.  She had a biopsy done on October 15th, and found out early this month it is cancer.  Patricia is facing a thyroidectomy surgery within the next two months. 

There is Nicholas, who is a physician with three small children, who had a thyroidectomy and a neck dissection in June.  He is still having drainage and medication issues. 

These are just three people out of the many who write me about their experiences with thyroid cancer.  A common theme in many of their letters, is they are looking for support and someone who understands what they are going through.  Despite their cancer, and challenges, these cancer patients and survivors continue on in with their lives.  They are there for their children and spouses.  They are there for their parents who have medical issues themselves, and for the others that rely on them.  Most importantly, they continue on for themselves. 

I have never met Holly, Patricia, or Nicholas, or many of the other people who have written me.  But I admire and love their spirits of determination and knowledge that they will beat their cancer and will be healthy to be around for countless birthdays.  Just the fact that they are sharing their stories, shows that they have taken control of their cancer, so they can fight it. 

Anyone can join the American Cancer Society in the effort to celebrate More Birthdays.  Just dedicate a blog post to someone you love who has been affected by cancer and celebrate them.  You can check out other posts on the American Cancer Society’s Birthday Blog for inspiration. 

Birthdays are good!  Let’s have as many of them as we can!

Subscribe to A Mama’s Blog's RSS feed so you never miss a post!